Sunday, December 16, 2007

I GOT YOU BABE by Abigail & Zachary

Hope you all enjoy this as much as we do...The LOVE to sing this song. Excuse the picture being so dark but ENJOY!!!

It's Beginning To Look Alot Like Christmas

We got LOTS of snow so the kids (yes even the BIG one) went out and had a few minutes of fun. Here are just a few pictures I took.

Sunday, December 9, 2007

Happy 5th Birthday, Zachary!

Today was Zachary's 5th Birthday! (SNIFF SNIFF) It seems as yesterday I was holding him as a newborn. Where has the time gone!!! We had a surprise birthday party for him on Saturday. Here are a few pictures for you to enjoy....

Zachary's Fireman cake

Are they trying to steal his food!?!

Enjoying my pizza!

Making a Wish

Zachary blowing out his candles

The birthday guests are enjoying pizza

Zachary with his 'unopened' presents

Opening his Doodle Board he begged for

Opening his watch he wanted

Daddy holding Zachary, Mommy & Abigail

Happy 5th Birthday, Zachary ~ More Pictures

Pawpaw & Mawmaw Avery & Zachary

Aunt Hannah & Zachary

Aunt Naomi & Zachary

Poppy & Memaw Watters & Zachary

Zachary with Sister, Abigail holding Cousin Tyrell, Cousins Natalia & Gabriel

Aunt Shelly & Zachary

Janice & Zachary

Cousin Lynette, (her boyfriend)Joseph & Zachary

Uncle Tim, Aunt Esther & Zachary

Cousin Kayla & Zachary

Monday, December 3, 2007

Random Information

These first few picture are of just Zachary (well there is one thrown in with me). He will be turning 5 in a few I'm kind of focusing on him a little more. Abigail will have her turn in a few weeks. These are more Christmas pictures than anything else really. It's so expensive to take them anywhere to have them done professionally because I can't just pick one pose...I have to have them all and they have to do 6+ poses ya know! Well, I don't know where to begin with Zachary. He is our miracle baby!!!!! I don't think there is a day that doesn't go by I thank the Lord for sparing our little guy. I have all week to explain but it would take much longer I'm sure so I'll 'try' to condense things. Zachary has Craniofacial Dyssynostosis (Yes, I have actually learned to say that word :P) which is a rare malformation syndrome characterized by lambdoid and posterior sagittal craniosynostosis and dysmorphic facial features. He has a nevus flammeus on the glabella and on the nape of the neck. Also, bilateral partial soft tissue syndactyly of the 2nd and 3 toes on each foot. He has type I Chiari malformation with tonsillar hernation and a serpiginous venous anomaly if the left paracentral region. At 13 month old, he developed increased ICP (Intra Cranial Pressure)and had a ventriculoperitoneal shunt placed. 2 1/2 months later Zachary had bilateral hernia surgery and 2 weeks after that underwent a 15 hour cranial vault reconstruction with fronto-orbital advancement. Believe me, that was one nerve racking day! The doctors were pleased with the outcome but did advise us that in the future there may be more surgeries to come. Almost 2 years later that dreaded day came. Zachary became sick one weekend with flu like symptoms and was admitted to the hospital for observation. An ICP monitor was inserted into the head to monitor the pressure and this is the problem started. The first surgery they performed was a revision of the shunt. Zachary's ICP level were running in the 70-80's. Normal level for a child his age is 0-10. The shunt revision brought his level down to the 20-30 range and the dr's didn't feel he was out of the woods enough. The began to prepare us that we might be facing the 15 hour surgery again. 3 days later they did perform that surgery. Again the surgery was a success....ISN'T GOD GOOD! As the drs were talking with us after the surgery and explaining again what was done the one dr expressed to us her concern the night before. She said she had a restless night thinking of this surgery. Because of all Zachary has going on with his little head, she strongly felt he may not make it through the surgery. One area they need to get to they are unable to because of the malformation. We were able to witness to the dr's. Of course, again, we cannot be guarantee'd no other surgeries. We keep trusting the Lord! So as you see, Zachary is very special to us. (Not that Abigail is any less special) Zachary is beginning to realize some of what has went on with him and has asked questions. As his mommy, this has been a little hard for me having to 're-live' this but I think he needs to know these things. One thing that makes Zachary unique with the syndrome is that usually children with Craniofacial Dyssynostosis are mentally disabled, have physical disabilities etc etc BUT Zachary has NONE of those. There are only 2 known cases of children such as Zachary, him being one of the two. Zachary is EXTREMELY active & EXTREMELY smart. We would not trade him for ANYTHING!!!! God definitely has a plan for his little life. It does his mommy's heart wonders when he stands in church on his own and says "I LOVE JESUS"....mommy ALWAYS sheds a few tears .... sniff sniff Well, now that I've written two books, I will close for now. Of course, I have not included everything but we would be here the next 2 years LOL. Well, hopefully this will help some of you understand a little more of Zachary's condition. He is our miracle!!!! Mommy loves you Zachary!


The Finished Product

Abigail hanging ornaments

Zachary hanging ornaments

Children are PRICELESS!!

Even got my hubby to help! Must be he wants something for Christmas :)

Our puppy, Cuddles

Such a wonderful poser....

Monday, November 26, 2007

Scenes from Thanksgiving

This is my precious Grandmother

Nanny & all her Great Grandchildren

All the grandchildren ~ Don't think this was an easy picture to get!

Grandpa & Grandma with all their grandchildren

My sweet grandmother again!
My brother & his family was in for Thanksgiving...they live in Kansas. They will not be able to make it in for Christmas so we exchanged gifts with them over Thanksgiving. Here are a few pictures of the kids with some of their gifts.

Timmy with Scooby Doo ~ his favorite

Aaron ~ starting him out early with a laptop computer

Abigail with her new Disney Princess Light

Zachary and his new pop guns...STICK 'EM UP!

Luke loves his Veggie Tales!

Jason is soon going to learn to Duck Hunt

Steven and his new outfit for the 3 wheeler

Our Carver ~ My Dad

The Children eating their Turkey Dinner

Some of the adults indulging

The Bread Lady ~ My Mom

Pass the plate please ~ My Aunt Lisa

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