Hope you all enjoy this as much as we do...The LOVE to sing this song. Excuse the picture being so dark but ENJOY!!!
Sunday, December 16, 2007
Sunday, December 9, 2007
Today was Zachary's 5th Birthday! (SNIFF SNIFF) It seems as yesterday I was holding him as a newborn. Where has the time gone!!! We had a surprise birthday party for him on Saturday. Here are a few pictures for you to enjoy....
Zachary's Fireman cake
Are they trying to steal his food!?!
Enjoying my pizza!
Making a Wish
Zachary blowing out his candles
The birthday guests are enjoying pizza
Zachary with his 'unopened' presents
Opening his Doodle Board he begged for
Opening his watch he wanted
Daddy holding Zachary, Mommy & Abigail
Pawpaw & Mawmaw Avery & Zachary
Aunt Hannah & Zachary
Aunt Naomi & Zachary
Poppy & Memaw Watters & Zachary
Zachary with Sister, Abigail holding Cousin Tyrell, Cousins Natalia & Gabriel
Aunt Shelly & Zachary
Janice & Zachary
Cousin Lynette, (her boyfriend)Joseph & Zachary
Uncle Tim, Aunt Esther & Zachary
Cousin Kayla & Zachary
Monday, December 3, 2007
These first few picture are of just Zachary (well there is one thrown in with me). He will be turning 5 in a few days....so I'm kind of focusing on him a little more. Abigail will have her turn in a few weeks. These are more Christmas pictures than anything else really. It's so expensive to take them anywhere to have them done professionally because I can't just pick one pose...I have to have them all and they have to do 6+ poses ya know! Well, I don't know where to begin with Zachary. He is our miracle baby!!!!! I don't think there is a day that doesn't go by I thank the Lord for sparing our little guy. I have all week to explain but it would take much longer I'm sure so I'll 'try' to condense things. Zachary has Craniofacial Dyssynostosis (Yes, I have actually learned to say that word :P) which is a rare malformation syndrome characterized by lambdoid and posterior sagittal craniosynostosis and dysmorphic facial features. He has a nevus flammeus on the glabella and on the nape of the neck. Also, bilateral partial soft tissue syndactyly of the 2nd and 3 toes on each foot. He has type I Chiari malformation with tonsillar hernation and a serpiginous venous anomaly if the left paracentral region. At 13 month old, he developed increased ICP (Intra Cranial Pressure)and had a ventriculoperitoneal shunt placed. 2 1/2 months later Zachary had bilateral hernia surgery and 2 weeks after that underwent a 15 hour cranial vault reconstruction with fronto-orbital advancement. Believe me, that was one nerve racking day! The doctors were pleased with the outcome but did advise us that in the future there may be more surgeries to come. Almost 2 years later that dreaded day came. Zachary became sick one weekend with flu like symptoms and was admitted to the hospital for observation. An ICP monitor was inserted into the head to monitor the pressure and this is the problem started. The first surgery they performed was a revision of the shunt. Zachary's ICP level were running in the 70-80's. Normal level for a child his age is 0-10. The shunt revision brought his level down to the 20-30 range and the dr's didn't feel he was out of the woods enough. The began to prepare us that we might be facing the 15 hour surgery again. 3 days later they did perform that surgery. Again the surgery was a success....ISN'T GOD GOOD! As the drs were talking with us after the surgery and explaining again what was done the one dr expressed to us her concern the night before. She said she had a restless night thinking of this surgery. Because of all Zachary has going on with his little head, she strongly felt he may not make it through the surgery. One area they need to get to they are unable to because of the malformation. We were able to witness to the dr's. Of course, again, we cannot be guarantee'd no other surgeries. We keep trusting the Lord! So as you see, Zachary is very special to us. (Not that Abigail is any less special) Zachary is beginning to realize some of what has went on with him and has asked questions. As his mommy, this has been a little hard for me having to 're-live' this but I think he needs to know these things. One thing that makes Zachary unique with the syndrome is that usually children with Craniofacial Dyssynostosis are mentally disabled, have physical disabilities etc etc BUT Zachary has NONE of those. There are only 2 known cases of children such as Zachary, him being one of the two. Zachary is EXTREMELY active & EXTREMELY smart. We would not trade him for ANYTHING!!!! God definitely has a plan for his little life. It does his mommy's heart wonders when he stands in church on his own and says "I LOVE JESUS"....mommy ALWAYS sheds a few tears .... sniff sniff Well, now that I've written two books, I will close for now. Of course, I have not included everything but we would be here the next 2 years LOL. Well, hopefully this will help some of you understand a little more of Zachary's condition. He is our miracle!!!! Mommy loves you Zachary!
The Finished Product
Abigail hanging ornaments
Zachary hanging ornaments
Children are PRICELESS!!
Even got my hubby to help! Must be he wants something for Christmas :)
Our puppy, Cuddles
Such a wonderful poser....
Posted by Sarah at 12/03/2007 04:36:00 PM
Monday, November 26, 2007
This is my precious Grandmother
I LOVE YOU, GRANDMA!
Nanny & all her Great Grandchildren
All the grandchildren ~ Don't think this was an easy picture to get!
Grandpa & Grandma with all their grandchildren
My sweet grandmother again!
My brother & his family was in for Thanksgiving...they live in Kansas. They will not be able to make it in for Christmas so we exchanged gifts with them over Thanksgiving. Here are a few pictures of the kids with some of their gifts.
Timmy with Scooby Doo ~ his favorite
Aaron ~ starting him out early with a laptop computer
Abigail with her new Disney Princess Light
Zachary and his new pop guns...STICK 'EM UP!
Luke loves his Veggie Tales!
Jason is soon going to learn to Duck Hunt
Steven and his new outfit for the 3 wheeler
Our Carver ~ My Dad
The Children eating their Turkey Dinner
(WHOSE DAUGHTER IS THAT WITH HER MOUTH STUFFED!!!)
Some of the adults indulging
The Bread Lady ~ My Mom
Pass the plate please ~ My Aunt Lisa
- ► 2008 (81)
- ▼ 2007 (56)